In October 2016 I was diagnosed with a very terminal and seemingly unbeatable cancer diagnosis that completely derailed my life giving me just 3 to 6 months to live. There were no known survivors from a stage 4 Cholangiocarcinoma setting at that time.
Fast forward to October 2017 when I was diagnosed cancer free – NED – a full and complete response, the second ever such success via the clinical trial Keynote 158.
What happened in 2017 placed me at the center of a stunning modern-day medical breakthrough. I had unwittingly graduated with a very intimate and unique knowledge in modern medical breakthroughs and what is now possible for patient survival.
To my knowledge at the time of writing, just 3 or 4 CCA patients globally have fully responded to overcome a late-stage (stage 4) metastatic CCA cancer – I am fortunate to be one. This was also the beginning of a new challenge to communicate what I had learned to those most in need.
Patient Pathway & Navigation
My treatment pathway and experiences have been carefully recorded to contribute to the next generation of patients and patient success – the next generation patient pathway.
I am now uniquely equipped to help people “Know what must be known, in the order, it must be known from the very moment of a diagnosis and have become proficient in translating difficult medical speak into plain patient speak.
I have a comprehensive grasp of developing, building, and implementing Patient Pathways that benefit serious life-threatening GI Cancers
When it comes to cancer, do not underestimate the power of the intangible
You could say I give other people’s “Hope” a leg up by providing it with the structure and momentum it needs to move forward and find its own reality.
Your Fiction – My Reality
“Sometimes great achievements can only come at the expense of other people’s realities. I have found that being a little unrealistic has helped me see beyond the limitations of those realities.
“Cancer is harder than hard, it painfully and relentlessly exposed who I was, but it has also exposed what I was capable of. It taught me the value of self-accountability and its inescapable responsibilities, it taught me to look through the impossible to where it could be, this was a big contributor in achieving beyond what was thought possible…”