THANK YOU MERCK & KEYTRUDA

Matt Reidy and I are 2 of just 3 Patients globally to achieve complete and full remission. This is the first time the word ‘cure’ has been mentioned in the same sentence as Cholangiocarcinoma, a most aggressive cancer of the bile ducts, where less than 8 % make it through to 5 years and and a dire 1% of metastatic patients such as Matt and myself.

VIEW MATT’S STORY

Hi & Welcome

Surviving the Facts from the inside out and beyond

This is the place that I share my Experiences, Knowledge and Wisdoms from living at the very edge of life. I have been stripped naked from the outside in. I was forced out to an edge that I did not know existed, a very lonely foothold with a view back over the crowded centre and beyond. I am still digesting what I have seen, experienced and learned. I am also very very aware of the opportunity and responsibility that I have.

I have continued to organise old scribbles and notes into the order in which they occurred. Much of what I wrote was under emotional and physical duress and very incoherent states. Scribbling and note taking kept my mind on purpose, it gave me back control it allowed me to write myself out of a bad story and into a better one. I like to think this played its part in my most unlikely success.

I have now created a separate business card for my current activities-
Thanks for dropping in
Steve

My Biz stuff
Chapters of Me

Recent Posts

A well worded intro ?

I would describe myself as the classic modern day ‘Active Lifestyler’ which really means I am over 50 and clinging to my diminishing youth. I am an ‘Active lifestyler’ by bike.  Living on the Gold Coast is a pretty  cool lifestyle to  play and work in which means I am out cycling, running or ocean swimming at around 5am most days and then back for a coffee to kick off the next part of my day.

My Family

Born; Waikanae NZ
Live in Main Beach Gold Coast Australia since 2005
Married Claire January 1989 in Waikanae.
Daughter Georgia (b: 1994) Educated Thomas Kennedy Junior Academy (NZ) + St Hilda’s (Gold Coast) + MBA via QUT (Brisbane) Georgia works in a Clinical Management roll for Babylon Health in Vancouver establishing the Canadian footprint. Babylon is rolling out a new wave of health innovation with shareholder/partner Google and is aimed at healthcare services delivered by an “App” platform between Patient and Doctor.
Son Zach (b: 1990) – Educated Thomas Kennedy Junior Academy (NZ) + TSS (Gold Coast) + MBA via Bond University (Gold Coast) also Bentley university Boston USA. Zach is Managing Director of an International Business Head Quartered in London UK. He specialises in large Business Turnarounds and Carve-Outs. Zach cut his teeth primarily through a very successful career with Deloitte Australia where he also qualified as a CA Accountant and held the position of senior manager in their “Turnaround Division” up until 2016 before taking up new offers from a European Venture Capital fund who were looking for his type of expertise.

Happen on Life or
Life will Happen on you

With that said life certainly happened on me in a big way. A significant life altering Cancer battle made the drama of being paralysed from a broken neck pale into insignificance.

Enduring and Surviving has reshaped me and my future in ways that I could never have foreseen. I now have a new opportunity to “Happen of Life’ once again

What is Cholangiocarcinoma?

A cancer of the Bile Ducts that connects and invades the

  • Liver
  • Gallbladder,
  • Stomach,
  • Pancreas
  • Duodenum

When surgery is possible they will take all or most of these organs out – they call it a whipple! It is generally thought that if you detect the cancer early enough it can be overcome, that is incorrect with this cancer  –

  • “Stage 0” will progress relentlessly to “Stage 4. ” Surgery is considered the only chance of survival, but in most cases it will return more aggressively than before.
  • The average patient survival is around 7 months.
  • Surgery is the only chance, after that there is no cure option.

The quick facts

I NICKNAMED THIS BEAST

‘Cholangio the Beast’
An unbeaten Terminal Cancer Gladiator – A cancer at any stage of discovery that is terminal.

The news flow on this is all bad

  • No Cure
  • No Early detection process
  • Average overall survival 6.8 months
  • 5 year survival chance 8 %if it doesn’t metastasis
  • 5 year survival chance with metastasis is 1%
Details and Links

MY PRIMARY LINKS
MY CCA FACTS | MY SURVIVAL FACTS | MY DIARY

MY DETAILED OVERVIEW
DIAGNOSIS TO NED 

OUR KNOWLEDGE HUBS
CCA AUSTRALASIA | THE CANCER TOOL KIT SERIES

Contact Details

The Prognosis
  • Untreated – I have 6 Months.
  • Treated: I could see 6 months to 2 years
  • I had no metastasis –  GOOD!
  • I was operable – Very good, I think
  • I qualify for a “Whipple” now that’s a big big op!

So where to next ?

25 hours of life threatening surgeries awaited an unsuspecting Steve!

All this for someone who couldn’t look at a needle let alone blood and the idea of any surgery.

2016 November:

A Cancer Diagnosis

  • The Entree Op: ‘ECRP’: – A small op ( 2- 3 hrs) that inserts a camera and surgical investigation that can carry out “stent implanting” and restore bile flow, also extracting a biopsy from the suspected tumor.
2016 December 8th

Gold Coast University Hospital.
A Full ‘Whipple’ Operation – 11 hrs operation, Harald Puhala and his team of 7 surgeons that removed

  • Gallbladder
  • 80% Stomach,
  • 100% Duodenum,
  • 95% Bile Duct,
  • 2 Lymph Nodes,
  • Head of  Pancreas (33%)
2017 January 5th

Aneurysm Emergency Operation –
My life was now being measured in minutes if not seconds.
While recovering at home from the Whipple surgery, it came on very fast, I fell unconscious and began vomiting up blood. Once again the Ambulance is called and they are on a mercy dash to get me into surgery. While being contained and assessed in emergency I lost more than half my blood in about 3o seconds.  Interventional Radiology Surgeon Tom Snow saved my life that night in a 5 hour operation which ended up terminating the artery which is responsible for 30% of the Livers blood supply. This event was a direct complication of my ‘Whipple’ Operation, just 30 days earlier. If not for Claire’s cool head and decisive actions I would not have survived for the ambulance crews arrival. Yes luck was on my shoulder once again in the form of Dr Tom Snow who just happened to be on the hospital grounds when I most needed a good break.

It all happened in the briefest of moments.

“You busted through my front door in the dark of night, you wrestled me to the ground, repeatedly raping me to within seconds of my last breath, ‘Cholangio’ you left me for dead, cold and beaten, but I did not die, I still breath.

Cholangio you took so much from me, yet you left something behind.

As I struggled for my survival I found something deep within me that you could not see nor reach, my “Unconditional Willingness” was still intact protected within my centre. You and your cancer army could not reach what you could not see.

Cholangio you pushed me to my edge but I did not go over. As I clung there with just a finger hold left on life, my mind unexpectedly calmed. From my edge I could see so much more than I had ever seen before.

Your intentions were clear and brutal, as you skilfully culled me from the herd, but unwittingly you reactivated my instincts, and freed my inner vision trapped deep within – I could see again, my “Looking Glass” had returned and could see beyond your grip.

Cholangio I conceded to your unwanted grip, and as you rejoiced in your victory, you loosened your grip for just a moment, but a moment was all I needed, I re-engage and slipped your grip and the awaiting noose.

Cholangio I took that next step at speed without hesitation or condition. I continue to move forward with my Willingness’ and ‘Looking Glass’ in hand. I am not limited  or daunted by the convenience of proof. Yes I have learn’t that proof is born from within the Looking Glass. I know the dangers of an idle and convenient proof that can so easily disarm the pursuit of perfection.

Cholangio I am aware of your stealth, your shadow and your grip. I know you and you know me. I know your path, you know mine, I will always see your path, so that our paths remain as parallel.
Steve

Living Life in the Terminal Lane

Much has been learnt, forged in fire between the hammer and the anvil
Live Lite is an everyday thing!

  • Eat Lite
  • Move Lite
  • Play Lite !
  • And Smile like the Sun

Everyday I run, cycle, Swim in the surf, and let out the real smiles. I am no longer the loneliest person in a crowed room and absolutely love the feeling of being normal, it’s so simple but it’s the best thing ever

Bugger the Bucket

The bucket list was never on my agenda. My thoughts were that if I dipped into that bucket, then it is all over Red Rover for me.
I have never pictured what a bucket list would look like for me, so I guess it was easy to push this popular ideal to the sideline and keep my willingness undaunted.

An ‘Unconditional Willingness’ that was untainted and without need of proof was all I had left in my tank. 

An Edgy New Vision

The ‘Pain of Living’ is far more enjoyable than the pain of dying. Both have been determined teachers.

I was pushed to my edge, but I did not go over. Out on the edge is scary stuff, but a new reality emerged, I could now see so much more than I had ever seen from the crowed centre which I had just come from.

“I quickly learned that I had precious little energy left, and  it was more effective to travel alongside this beast of a cancer. I had to eliminate the thought that Cancer was my foe, instead it was my new partner on a new pathway to new sunrises. I could not risk an energy sapping head to head confrontation with a powerful foe that I did not know or understand.”

The new penicillin

As a terminal patient I was to become a central and integral part of a significant step change in medical history, forever embedded me within this change. My success in  overcoming Cholangiocarcinoma  from the metastatic setting underpins a significant change in stage 4 terminal cancer diagnosis survival – this is a modern day penicillin moment in history, patients do not survive this cancer  from the metastatic setting  (Spread) – I am now just one of 4 Metastatic Cholangiocarcinoma patients to achieve this globally. Immunotherapy is having substantial impacts and it is only in its infancy – cancer will become a curable and manageable disease in my lifetime and I want to continue to be part of this.

What didn’t happen when I was diagnosed

No priority or what next guide was given nor recommended. To this day I have never seen one anywhere across the globe. You will probably jump to a conclusion that I must be incorrect. There is no centralised tool kit of priorities at the patients fingertips upon diagnosis, if you do know of such a resource please, please send it to me steve@stevehomes.net.au

So Claire & I created a Tool Kit to share

Claire and I have searched for 2 years and found nothing that resembled what I actually needed when first diagnosed, so we began creating one.

It’s logically evolved into a series of Tool Kits tailored specifically to each person impacted by a serious cancer diagnosis, beginning with a Tool Kit for the Patient, and a separate tool kit for their Caregiver.

A pop up Community

When a person is diagnosed with a serious cancer it immediately creates a pop up community of concerned love ones at its centre and quickly ripples outward to friends, work colleagues and the wider community. The Cancer Tool Kit Series works to address this providing specific tool kits solutions, all of which are designed to sync back to one harmonious and curative theme.

There is significant power, perhaps magic within a community who move in harmony to achieve one common goal.

The Cancer Patient and Caregiver community

The Tool Kits are designed from the collective of experiences, knowledge and wisdoms derived from “our Globally Connected Patient and Caregiver communities.” A gift forward to the Newly Diagnosed Patient and Caregiver, from those who have successfully navigated the challenge in overcoming cancer.

A Peer to Peer Gift from Patient to Patient & Caregiver to Caregiver.
Delivering todays potentially curative and lifesaving knowledge today. Delivering the choices and opportunities directly into the hands of the newly diagnosed patient and caregiver.

The Globally Connected Patient and Caregiver, (GPCP) provides a continual and real time summary of what is working and what is not. The trial of all trials is now accessible and transparent across the globe 24/7/

Dr Matthew Burge’s words to me when I agreed to voluntarily remove myself after 15 months of Keytruda infusions.

“There are many that we help a little and some we help a lot, and then there is you.” Go out there and ride your bike and do something special – see you in 3 months”

In reflection I fell into my default mode

Looking back what I was good at, was

  • Acceptance
  • Willingness
  • Story telling

Whether I liked it or not, I became infused into the serious world of Cancer, so it made perfect sense to keep my enemy close and align my /our combined skills, knowledge, experiences and purpose to become part of the cure equation.

Then came an unexpected responsibility: I am one of  just 4 people globally to survive a metastatic stage 4 setting of Cholangiocarcinoma, I achieved this via immunotherapy (Keytruda). There are many others like me that desperately need the help and support to get back up to solid ground. I have something significant to offer.

Cancer Sticks: A serious cancer diagnosis is such a bloody big thing to get your head around, it strips you bare and robs your certainty from deep deep within. People around you just don’t seem to get that! … they cannot see or comprehend this invisible loss, which just adds more pressure when navigating the treacherously dark shadows ahead. Survivor guilt is yet another hidden trap awaiting the unsuspecting  – I understand this very well!

24.5 HOURS OF SURGERIES & 2 CLINICAL TRIALS LATER

10.5 hours of Whipple surgery followed by an emergency 5 hr intervention (aneurysm) losing in excess of 50 % of my blood in 30 seconds and within seconds of death. All this in just one month seemed a bridge too far at the time.

What would I do different knowing what I know now?

Before committing to ANYTHING, I would get a biopsy and have a simple IHC test to establish an MSI- High and PD-L1 status. Although at the time I had never heard of any of this – I do now! I was MSi-high and PD-L1 positive which meant I could have avoided ALL those dangerous life threatening surgeries followed by Chemotherapies – that is what my rear vision mirror has revealed.

What I think I did well…

I retained an unconditional willingness to keep getting back up, despite the absence of proof. Making the next step no matter how small, became the obsession.

A net gain

I retained an unconditional willingness to keep getting back up, despite the absence of proof. Making the next step no matter how small, became the obsession. Also I would have to underline that I stuck with the science and eliminated EVERYTHING that is or was proclaimed as healthy -that meant no health shop, shopping from me. When I sat in front of my trial nurse for my regular debriefs there was nothing to add – no supplements, probiotics, microbio booster or THC /CBD – absolutely zippo, I followed the expertise and the science exactly.

Fair Dinkum Mate it’s as True as a Roo’s tale
September 2012

I Broke my neck seriously in the GC100 Cycle Event – I was suddenly paralysed for 8 months…but…

2013 back on the bike 

My first ride after breaking my neck, in the pitch black of a 5:30am ride on the Gold Coast, I get to take my first turn at the front of our group of 6 riders, it felt great to be back! And then fate intervened again, before I had time to settle in I  was hit head on by a bloody big Roo, – go figure those odds! Yet luck was on my shoulder, with an angry Roo entangled on my front wheel and sprawled over my handlebars our heads clashed eye ball to eye ball in the dark for the briefest of moments before his (or her?) tail slammed into the ground and in one big bounce disappeared into the dark tree line. Even though I was in shock, I could sense the panic from all behind me – I think their panic was of disbelief and fear of a re-broken neck, along with who was going to tell my wife!  I walked a way with black eye a busted bike and a bloody big Roo Story! Roo = Kangaroo !

Unenviable History
  • Belspalsy – 2002
  • Anaphylactic Shock (Prawns) 2008
  • Diverticulitis 2010
  • Broken Neck 2012
  • Gall Bladder Disintegration 2015
  • Terminal Cancer 2016
  • Aneurysm of Hepatic Artery 2017
  • Terminal, Terminal Cancer 2017
History Brief

Fair Dinkum Mate it’s as True as a Roo’s tale
2012: I Broke my neck seriously in the GC100 Cycle Event – I was suddenly paralysed for 8 months…but…
2013: My first ride after breaking my neck, in the pitch black of a 5:30am ride on the Gold Coast, I get to take my first turn at the front of our group of 6 riders, it felt great to be back! And then fate intervened again, before I had time to settle in I  was hit head on by a bloody big Roo, – go figure those odds! Yet luck was on my shoulder, with an angry Roo entangled on my front wheel and sprawled over my handlebars our heads clashed eye ball to eye ball in the dark for the briefest of moments before his (or her?) tail slammed into the ground and in one big bounce disappeared into the dark tree line. Even though I was in shock, I could sense the panic from all behind me – I think their panic was of disbelief and fear of a re-broken neck, along with who was going to tell my wife!  I walked a way with black eye a busted bike and a bloody big Roo Story! Roo = Kangaroo !

But wait there’s More

A total of 25 hours of life threatening surgeries awaited an unsuspecting Steve!

2015 Dec: Gall Bladder Disintegrates
My Gall Bladder completely disintegrated creating an extreme pain event. A fast ambo trip and an emergency 5 hour surgery to remove and clean it all out. The biopsy was clear of cancer.

2016 November: Cancer Diagnosis

Cholangiocarcinoma (CC) is a cancer within the bile ducts connecting the Liver, Stomach and Pancreas
  • ‘ECRP’: 2hr op to insert a  “stent” and restore bile flow, also extracting a biopsy from the suspected tumor.
2016 December 8th:

Gold Coast University Hospital.
Major Cancer Operation
‘Full Whipple’ Operation
11 hrs operation, 7 surgeons removing

  • 80% Stomach,
  • 100% Duodenum,
  • 95% Bile Duct,
  • 2 Lymph Nodes,
  • Head of  Pancreas (33%)
2017 January 5th

Gold Coast University Hospital.
Aneurysm Emergency Operation
It all came down to just seconds between life and death.
While recovering at home from the Whipple surgery, it came on very fast, I fell unconscious and began vomiting up blood. Once again the Ambulance is called and they are on a mercy dash to get me into surgery. While being contained and assessed in emergency I lost more than half my blood in about 3o seconds.  Interventional Radiology Surgeon Tom Snow saved my life that night in a 5 hour operation which ended up terminating the artery which is responsible for 30% of the Livers blood supply. This event was a direct complication of my ‘Whipple’ Operation, just 30 days earlier. If not for Claire’s cool head and decisive actions I would not have survived for the ambulance crews arrival. Yes luck was on my shoulder once again in the form of Dr Tom Snow who just happened to be on the hospital grounds when I most needed a good break.

2017 February

Chemotherapy: The Hamburg Trial 
Dr Mathew Burge: Royal Brisbane and Womens Hospital 
A very oppressive weekly regime of 6 hour infusion sessions delivering a potent combination of Gem/Cis directly into my veins. A new regime of 12 hours every Tuesday for 6 months.

Chemo and particularly this mix was a bloody tough gig. 6 months of hellish darkness, it was very Intensive & Debilitating, it stripped me bare – digging deep is an understatement I went well below my conscious zero point for survival. And to rub insult into injury Chemo failed me – it didn’t work, in fact it failed me spectacularly. It was July and I was slipping out the back door at rapidly. I now have multiple Liver Tumor Metastasise occurring, including multiple Cancerous Nodules throughout my lungs. Breathing had suddenly become my next big challenge with relentlessly increasing tumour pain.

2017 July

Terminally, Terminal – Nearly all over Red Rover!
August:
I was rushed onto to Keynote trial 158 so that Merck could throw me a “Hail Mary Pass” a last ditch effort, I now weeks if not days to live.
WOW, I caught it, and I am still alive,  just 10 weeks after my first infusion –  NO tumours evident, all gone!. So hard to explain this part . . . Just days before the first infusion the tumour growth continued its rampant and very painful invasion across the top of my liver under my ribs and lay down multiple cancer nodules throughout my lungs – breathing was painful and difficult.

Dr Matthew Burge

From Chemo climb to the Immuno Climb.
A very humble Oncologist Dr Matthew Burge set a “Hail Mary” pass in flight, all I had to do was catch it and stumble over the line of life! The Hail Mary in this game is the new Immunotherapy miracle – “Keytruda” by Merck in California.

My Keynote trial 158 progress
The trial has a 5 year time frame, you see more detail under “About my Cancer” entry.

Another X factor – Matt is a fellow cycling nut!
In cycling speak, Matt showed me his wheel and generously towed me up the climb of my life, and back into the safety of the bunch! What can you ever say that will be enough to thank him? Actions will have be enough, I will Live everyday until I die, in that order and I intend to do something remarkable and resourceful that adds value and repays the opportunity.

The Pathways of my Life started so simply

I just complicated it all from there.

Who could plan for losing so so badly? Many laugh at such scenarios . . . The stuff of movies and comedy not for real life . . . don’t laugh too loud about such folly, I have experienced it all. I was prepared or so I thought !

For richer for poorer, in sickness and in health. The world is my oyster  . . . It could never happen to me! and it’s not just about me its has a much much wider impact!

What did I do wrong? absolutely NOTHING, this could happen to anyone anytime. You can never prepare to avoid such a series of events, the trick seems to be in the recovery which seems so unlikely in times of extreme pain! We are all equipped with an internal  “freedom of choice” to try or not to try, truly a very powerful resource within which is at our disposal until our last breath.

Who could plan or foresee successes that I have experienced. Successes that have risen up from seemingly nowhere, born only from a willingness to keep trying without the comforts of any proof. Winning Lotto doesn’t even come close in any comparisons.

A roller coaster of events outside my control have decided my direction in life and the events have played out to a very sweet and very sour unknown script.

1989 Claire and I were married and what seemed not to long after that, my Dad Dennis very unexpectedly suffered a massive heart attack at the age of 52 and dropped dead right in front of my brother and I, at an evening cricket training session – Dad was the team coach.

2002 I win a brand new $50,000 Land Rover 4 wheel drive vehicle.

2008 I was given unexpectedly a 7 metre Italian motor home – $180,000.

2012 Broken Neck – During a cycling Event and in the lead group 30 kms into a 100km race, a large crash – I am now paralysed down one side in a ditch at the side of a country road.

2012 Financial Disaster strikes just two days into my broken neck drama – totally immobilised in a hospital neuro ward, the long treacherous arm of the GFC reached out and took down my business, I lost our family home and all financial resources, leaving us almost entirely broke. I was helpless and unable to move or respond to anything, this was heartbreaking and so so devastating.

2013 Broken Neck – 9 months later I fully recover-
2013  As true as a Roo’s Tale: In the pitch black of a 5:30am morning – My first recovery ride back with my cycling buddies after seriously breaking my neck 9 months earlier in a cycling race. We were heading up to a favourite Gold Coast Climb, then whammo a Kangaroo flashes out of the tree line and collided with me head on – the Roo and me eyeball to eye ball in the pitch black with a big semi heading straight at us in the opposite direction – the result ! – a busted bike, a black eye, followed by a lot of nervous exhaled laughs of relief from those behind me once they realised that I had not re-broken my neck.

2014 my younger brother Graeme RIP falls to Cholangiocarcinoma.

2014 Claire wins the grand tour prize to the “Tour Down Under” –  the world’s UCI Cycling tour opener in Adelaide Australia. An all expenses paid 8 day experience with the tour sponsor and pro cycling elite, worth several thousands of dollars.

2015 My Gallbladder disintegrates creating unbelievable pain, a medical emergency and 5 hour operation.

2016 I receive the exact same Cholangiocarcinoma diagnosis as my brother Graeme, that had me descending at a dizzying speed.

2017 (January) An aneurysm to end it all very quickly, but another stroke of  very good luck the right surgeon (Tom Snow) in the right place at the right time – with only seconds to spare Tom was available to save my life.

2017 (July) I was down to weeks if not days to live. Then came more luck in the form of a Dr Matthew Burge and a “Hail Mary Pass” from Keytruda – only a tiny subgroup of 9 people made it on to a global Keynote trial. I was the only one to respond fully and immediately.

2018 Claire wins the same amazing “Tour Down Under” 2019 grand prize yet again,

2018 The Cholangiocarcinoma Foundation advised me that I had been awarded one of their 3 full scholarship positions to attend the Salt Lake City for the Annual Foundation Conference in Feb 2019.

A very weird normal rhythm to life from a young age.

I have experienced and learnt much in life, many many things that most would struggle to believe as true, yet I haven’t even mentioned my black eye and busted bike as a result of a head on crash with a Kangaroo. This happened on my very first group recovery ride just 10 months after breaking my neck.

Pain and pleasure have been significant and determined teachers, essentially gifting me uniquely powerful insights, and Wisdoms in life.
I truly have been forged in fire between the Hammer and the anvil.

These are key points that seem to bet me through
  1. Acceptance
  2. Willingness
  3. Writing a story then living it
A life long Mantra

Happen on life or life will happen on me

I have learnt over time to Pursue Perfection is healthy

It confronts potential, opens up honestly, and delivers opportunities – It maintains a healthy direction. It can be scary, liberating and overwhelming, all at the same time. It defines my purpose and contribution value. These are the steps /hoops I put myself through and I so this with absolute conviction and consistency – even when the chips are down –

  1. Be a little unrealistic often – it transcends the now to a place where aspirations can breath and bath in their reality.
  2. Do that one thing
  3. Be remarkable @ it
  4. Be Resourceful with it
  5. Add Value to it or don’t do it
  6. Surround it with talented people that can make it all a reality.
No matter what happens in life

Everything about my life is always in the next step and the one beyond that until momentum reaches out and embraces, lifting me up beyond the now. Momentum transports and transcends me to a place where my dreams are can breathe and bath in their own realities. A place without rules or logic that give birth to visions and plans – Yes this is where I get to Walk on Water, without judgement or the weight of other peoples realities – It’s real and it’s WOW STUFF !
It would be such a tragedy of the opportunity on life, if I had to only abide by the realities of others, as my reality are often quite different – I like that about myself. I really can survive the facts from the inside out and I can create my own realities.

Some Tricks

Allow yourself to be a little unrealistic often, to transcend the now, to let your mind go to a place where your aspirations can breath, play and bath in their own realities.

Trusted Pillars of Thought
  1. Happen on Life or Life will happen on you
  2. Rise and Rise again until lambs become lions
  3. We all have the choice to “Try or not to try” until our last breath.
The  Traps
  1. Well Intended inexperienced advice that is freely given – and often a trojan horse type gift !
  2. Proof is a luxury – do not let the lack of it become your excuse for not taking that next step.
  3. Convenience can quickly develop into an unseen terminal cancer, I am not just talking health . . Friendship, Relationships, Business and finances.
  4. Be Realistic – Realism is in the eyes on the beholder – make sure you own your own realism.
Life is a one time opportunity
1.  Pursue Perfection!

Pursuing Perfection unhooks you from the traps of a crowded centre. It unlocks aspirations, and allows you to reach into the unchartered unproven potentials at your edge. It is uncomfortable and confronting, but will reveal what others cannot see and allow you to transcend the traps of a crowed centre. This has taken the human race from caveman to spaceman – what could it do for you?

2. Be Remarkable Be Resourceful – Be an Asset

Be a little unrealistic often, to transcend the now, to let your mind go to a place where your aspirations can breath and bath in their own realities and create new plans. Find that one thing that you can be remarkable and resourceful at, an asset, that adds value to those around you and beyond.

3. Learn, Try, Contribute

Learn Learn Learn – Try Try Try – Contribute Contribute Contribute, banish the word retirement and live life as an opportunity until your last breath. That is how you pass it on to to those who follow.

Resources that have helped me immensely

Technology

  1. Evernote: iPhone + All devices: Notes and Writing. This is my best best everywhere friend 
    https://evernote.com
  2. Trello:  iPhone + All Devices: White board type planning and note taking – good for projects, holidays  party planning etc
    https://trello.com
  3. WordPress has been a great journey
  4. Totally Apple connected and loving it.

Food

Note:  I eat normal -ish but the reality of 25 hours of surgeries is part of the deal – 80% stomach & 100% Duodenum -All gone finished!

 I tend to think in terms of “My Favourites” rather than how healthy.

Post surgery – Potatoes anyway I can, is my clear favourite

  1. Constitutional wake up drink: Lemon Water
  2. Constitutional and Inspirational kickstarter: 2 x Long Black Coffees every morning
  3. Breakfast Favourite: [1 x Weetbix + 2 spoons of Raw Oat bran + hand full of currants and skim milk]
  4. Staple Foods: All Root vegetables: My Fav is [All Steamed – All Unpeeled Baby Potatoes Onions, Garlic Gloves, and Peas – add Salt Pepper and knob of butter]
  5. Fruit Oranges, Kiwi fruit, strawberries and Bananas
  6. White bread and butter – no wholegrain or multigrain
  7. Constitutional Evening Glass and a half of Red
  8. Nearly zero on red or white Meats
  9. Very low on Fish – Except sushi
  10. No Cake, Ice cream or Chocolate  – well almost zero, had to eat that birthday cake!

Uncomplicated & Less combinations works best for me
I am weary of popular trends and Healthy Foods
especially if everyone is talking about them as fact.
Everyone knows better as educated by hearsay, friends and media. I do my own research and don’t preach it.
Anything in a packet or similar is in the suspect category and needs interrogation first.

Education

Retraining is the Key word for my life.
Its either retrain and meet the pace of change and its natural challenges, or fade into obscurity, or even worse – insignificance! I personally want to remain an asset to my family and friends, so a strong vibrant willingness, an open mind and an attitude to upgrade and evolve continually underpins me, Its empowering and fun to be current!

  • OncLive – The latest on cancer developments globally. Make sure you sign up for the email.
    https://www.onclive.com

Lifestyle

  • Netflix Mini Series and Doco’s got me through some difficult hours
  • Spotify keeps me motivated
  • Idealog an NZ online Publication – creative and current in lifestyle and Business
  • Facebook – Love the Community Groups, Business Pages – not so strong on my personal page. Definitely a great connection tool.
  • Run Walk Ride Swim
  • Going out forLunches not so much Breakfast or dinners
Read my Diary

My Walk with Cholangio the Beast

This was my original scribbles and attempts to organise my thoughts
It’s a bloody big challenge of both the mind and body to defeat or tame this seemingly unbeatable Beast … see my story My Walk with Cholangio the Beast” . . . the beast of all beasts.

Read my Diary

Life is Evolutionary with or without me ! We are all engulfed in this constant evolution. Embrace it, I do

Steve Holmes, www.steveholmes.net.au

Living life is most definitely in the eyes of the beholder, but it sure feels really really good, when we are all on the same song sheet and fully in sync with what we see
Letting it all out like a tweety bird in spring