Sometimes great achievements can only come at the expense of other people’s realities. I have found that being a little unrealistic has helped me see beyond the limitations of those realities.
Steve Holmes

Gold Coast,
Queensland, Australia.
Kiwi-born formerly Waikanae, New Zealand
Love Road Cycling, Running, & Rugby

Founder Cholangiocarcinoma Foundation Australia (CCF Australia), The Main Beach Foundation (TMBF), and The Cancer Toolkit. (CTK)

I develop and implement cancer resources for business and industry environments that better equip them ahead of or in response to unexpected cancer events in the workplace. Resources that can help reduce unnecessary and avoidable cancer deaths.

A cancer diagnosis is almost always unexpected, chaotic, and disruptive.

Business and Industry are significant community and family foundations, but they are also a large demographic sleepwalking directly into a steeply rising cancer trend with limited to no awareness or response capabilities. This is what I help with.

Too many unnecessary and avoidable cancer deaths due to…

  1. Newly diagnosed patients and caregivers not knowing what they do not know
  2. No clear, concise patient roadmap to guide them beyond the diagnosing physician’s office.
  3. Top-down information delivery of treatment options and processes is clogged, convoluted, lacking consistency, and empathy for the patient.
  4. Doctors, Medical Professionals, and Healthcare Providers are very often time-poor, fatigued, and subject to making mistakes like anyone else. Some are too conservative in their approach whilst others are not yet up to speed with the most up-to-date options and developments.
  5. Businesses, industries, and the Workplace populations are unnecessarily unaware and unprepared for an unexpected serious cancer event
Critical Distinction
  • Much of what you need to know and seek answers for falls outside of our health provider’s roles and responsibilities.

We can help reduce unnecessary and avoidable cancer deaths by helping people before they become patients, newly diagnosed patients, and their caregivers to help themselves by…

Pre Patient

  1. Equipping and empowering people within the workplace and business environments.
  2. Awareness of a starting point – where to go and what to do if the unexpected should happen.

Newly Diagnosed

  1. Upskilling them to know what they must know in the order it must be known, from the point of diagnosis.
  2. Provide them with a clear and concise roadmap to guide them forward from the moment of diagnosis.
  3. Develop and implement efficient and effective top-down information delivery innovations that benefit both the health providers and patient options.
  4. Provide resources that better equip and empower them to navigate interactions with their Doctors, Medical Professionals, and Health Providers.
  5. Upskill businesses, industry, and the wider community on critical awareness before people become patients.

Critical Distinctions

  • Cancer is almost always an unexpected and life-crippling event.
  • Generally speaking, knowledge is power, but when it comes to cancer, knowledge can define life or death outcomes.
  • Our greatest threat is “Not knowing what you do not know.” Our greatest resource is to begin knowing from those who do.
The Point of Diagnosis

The point of diagnosis forms a devastating disorientating abyss for the “Newly Diagnosed Patient & Caregiver” to cross.

  1. The Cancer Toolkit was specifically designed by successful patients and caregivers to bridge this deep disorientating abyss and provide the patient’s ‘Hopes & Dreams’ with the structure they need to move forward.
  2. A cancer diagnosis is almost always unexpected, people can not plan to avoid cancer, but they plan on how to respond should an unexpected cancer event ever occur.
The Prepatient

The Workplace populations are our fundamental community and family pillars. Currently, this demographic that we so rely on, is sleepwalking into a rising cancer trend, with no critical awareness of the looming abyss and its destructive consequences on both families and the businesses who employ them.

  1. Awareness of “The Cancer Toolkit” community of resources provides a significant advantage in preparing ahead for an unexpected cancer event
  2. The Toolkits better equip the employer in managing the impact of cancer in the workplace.
Contributing to the cancer success equation…

Just as science is discovering new medical interventional treatment breakthroughs by uncloaking and exposing cancers that learned to evade our immune system, I am also contributing to the cancer success equation by unclogging and simplifying the information conduits to the newly diagnosed patients, their supporter communities, and the unsuspecting workplace environments.

Cleaner, crisper, and up-to-date information delivery to the “Coal Face of Cancer” that better equip the newly diagnosed patient to respond and in turn, will contribute to more successful outcomes in its own right.

Just to be clear there have been considerable medical breakthroughs and much-improved knowledge on the patient pathway to best outcomes, BUT have yet to reach the majority of the newly diagnosed patients at the critical and pivotal point of diagnosis. This is something that I am well equipped to contribute.

The Cancer Toolkit initiative has been specifically designed for this challenge. An effective peer-to-peer bottom-up resource designed for the newly diagnosed patient and caregiver. A resource developed from the distilled knowledge, experiences, and wisdom of the globally connected patient and caregiver communities. Gift forward from those who know.

Equally Connected - Equally Responsible

What I do is give other peoples “Hope” the structure and momentum it needs to move forward and find its own reality.

“Sometimes great achievements can only come at the expense of other people’s realities. I have found that being a little naive and unrealistic has helped me see beyond the limitations of those realities”

“Cancer is harder than hard, it painfully and relentlessly exposed who I was, but it has also exposed what I was capable of. It taught me the value of self-accountability and its inescapable responsibilities, it taught me to look through the impossible to where it could be this is how I achieved beyond what was thought possible…”

More details
Business – Industry
  • Consult Business – Employee/colleagues functioning workplace
  • Consult Employers – Mitigate workplace disruptions and Productivity impacts
  • Educate and guide Employees.
  • Presentations, Workshops, and Lunchbox Discussions. (Onsite and Virtual)
  • Embed and Orientate “The Cancer Toolkit” resource into the workplace.
    Toolkits provide the go-to “Awareness Advantage” before an unexpected diagnosis.
Community
  • Introducing the Patient Toolkit to the patients & their supporters
  • Talks/discussions with the Patient and their community of supporters
  • Audit results, looking for red/green flags for what may have been missed or overlooked
  • Interpret and simplify current progress and results to enable understanding and new decision making

Other private services and resources in development

Important Notes

The Cancer Toolkit is a community of Toolkits specifically tailored to synchronize the effort of “the many” around the one at their center – The Patient. Newly Diagnosed Patients will always have free unrestricted access to the lite version of the “Patient Toolkit

We cannot plan to avoid cancer, but we can plan how to respond.

Please do not hesitate to call me for a chat on how I can best help
Regards Steve

▶︎ P: +61 415 153 522
▶︎ E:Steve@steveholmes.net.au

General Experience 
  • I have assisted many patients and caregivers across the world to navigate and respond to a serious cancer diagnoses. 
  • I help businesses and industry with their understanding and implementation in supporting the patient pathway 
Patient

In October 2016 I was diagnosed with a very terminal and seemingly unbeatable cancer diagnosis that completely derailed my life giving me just 3 to 6 months to live. There were no known survivors from a stage 4 Cholangiocarcinoma setting at that time.

What happened between then and now placed me at the center of a stunning modern-day medical breakthrough – a new level of knowledge & what is now possible.

To my knowledge at the time of writing, 3 patients globally have fully responded to have overcome a late-stage terminal stage 4 metastatic CCA setting – I am fortunate to be one.

Patient Pathway & Navigation

My treatment pathway and experiences have been carefully recorded so that my success can be shared forward – it may also inspire yours.

I am uniquely equipped to help people “Know what must be known, in the order it must be known from the very moment of a diagnosis. I am proficient in digesting and translating difficult medical speak into plain patient speak.

I have a comprehensive grasp of developing, building, and implementing Patient Pathways that benefit serious life-threatening GI Cancers

Consulting and Engagements
  • Industry, Business & Community.
  • Leadership roles in developing Next Generation Precision Pathways and initiatives that better equip Patients, Communities, Industry, and Businesses ahead of or in response to a serious unexpected cancer event.
  • Leadership roles in synchronizing Patients, Medical Professionals, and their related Communities with the Next Generation initiatives
  • Industry, Business, and community awareness and implementations of Next Generation initiatives
  • Information Development & Delivery
Patient and Industry Technology development
  • Synchronized Community
  • Distilling the Globally Connected Patient and Caregiver knowledge, experience, and wisdom
  • Navigating Cancer
  • The Patient Pathway
  • Immuno-101
  • Global Cancer Data Funneling, Packaging, and Delivery
  • Mutational Matchmaking
Experience overview 
  • GI Surgery
  • Clinical Trials
  • Immuno-101 (Immunology /Immunotherapies)
  • Global Patient Advocacy
  • Global Patient and Caregiver Mentor –  serious and late-stage CCA + GI patients
  • Panel participant and CCA representative, including the inaugural 2022 Australian Cholangiocarcinoma Stakeholders Meeting
  • Experienced in Cancer Community development and engagement, including the “Globally Connect Patient and Caregiver”
  • Audit/ Review/translate NGS – Genomic Patient findings
  • Review/translate Clinical trial reports, findings, and options
  • Simplifications – Medical Speak to Patient Speak
CCA Experience inspired The Cancer Toolkit

Cholangiocarcinoma – (Bile Duct Cancer)
I established Cholangiocarcinoma Australia and the CCA Patient Toolkit to share with my fellow patients and their support community.

The success of the CCA patient Toolkit naturally led to the development of an all-cancer toolkit. The Cancer Toolkit as a synchronized community of toolkits that provided a checklist and roadmap that guided and equipped the patient and their community of supporters. A community on the same page, tapping the power of the many for the benefit of the one – the patient.

The Cancer Toolkit’s primary purpose is to help reduce unnecessary and avoidable cancer deaths, by better equipping the newly diagnosed patient and caregiver from the moment of diagnosis.

The Cancer Toolkit content has come from my own hard-earned experiences along with the distilled knowledge, experience, and wisdom of the globally connected patient and caregiver communities. These are the people and patients at the coalface of the cancer battle who are rewriting the dire statistics that overwhelm the newly diagnosed.

Toolkits ensure that the newly diagnosed patient and caregiver know what must be done and in the order, they must be done.

My areas of experience and focus ~
  1. Tumor immunology,
  2. Clinical Trials
  3. The Checkpoint Pathway
  4. The Patient Pathway
  5. Bridging the abyss beyond the diagnosis
Tumor Immunology

The interaction and pathways between the immune system and tumors

Next-Generation Sequencing (NGS)

Discovering DNA & RNA sequences from biopsy tissue samples reveals the specific mutations that are driving cancer growth

The Checkpoint Pathway

Using the body’s own immune system to target & eliminate the mutations that are driving the cancer’s growth.

MMR/dMMR (d = deficient)

Mismatch Repair genes are our Body’s DNA Spell Checkers

MSI: Microsatellite Instability

Microsatellites are tracts of repetitive DNA –
Instability creates repetitive unchecked mistakes

PDL-1: Program Death Ligand 1

Checkpoint (Proteins) switch on or off an immune response

TMB – Tumour Mutational Burden

The number of mutations within a cancer growth

Medical Research meets patient research

So I am a little bit of a mix of all these things. I find myself at an intersection of topics that bring insights that can be applied to the Newly Diagnosed Patient’s ability to continue creating better quality responses to a serious cancer diagnosis.

We are also quickly improving how to translate and transition today’s best cancer knowledge & research breakthroughs into today’s Patient Choices.