Explore patient empowerment in cancer, emphasizing hope, active participation, & transforming healthcare through Empowered Patient Initiative

Pictorial Patient Pathway - Healthy to Terminal to Healthy

The Empowered Patient Initiative:
Steve Holmes
“Improving patient empowerment improves parity and survival by reducing avoidable deaths due to lack of knowledge, understanding and or access”

Please drop me a comment in the comments section below.

The Empowered Patient:

No Patients, No Cancer; No Football, No Game!
Empowering the Patient, Empowers the Doctor, Improves Survival, and Transforms Healthcare.


Empowerment Empowered Patients future medicine. Transforming Conventional hope, willingness, imagination, & persistence.


This article boldly ventures into the subject of paramount significance in oncology: the science and influence of patient empowerment. The proposition is as straightforward as it is revolutionary – patients aren’t merely passive recipients, but active participants. Their understanding and application of medical knowledge can shape the future of medicine in ways previously unimagined. It’s critical to assert, without any room for doubt: the patient is the driving force, endowed with the ultimate responsibility and potential to transcend the known and finite boundaries of science and medical expertise.

The Empowered Patient: The Catalyst of Change

The patient’s role becomes critical when confronting serious diagnoses like cancer. When all available medical interventions have been exhausted, a patient’s hope frequently emerges as a transformative variable. It transcends the finite nature of the medical framework within which medical and healthcare professionals must operate. Patients reach beyond this knowledge out of necessity and recruit their own capabilities not seen or available to health professionals, venturing into new realities and new knowledge that extends beyond our current conscious comprehension or consensus.

This hope acts as both a potent and persuasive force and a bridge to the unknown, sustaining patients through their darkest moments. The power of hope is well documented throughout human history, sparking achievements against perceived impossibilities, from landing on the moon to circumnavigating the globe. It must not be downgraded, dismissed, or persecuted – whether accidentally or intentionally.

Despite its importance, hope is often neglected within the healthcare system. It is rarely given explicit attention in treatment protocols or clinical guidelines. Yet, it must not be downgraded, dismissed, or persecuted – whether accidentally or intentionally. We must recognize, legitimise, and centralise hope in our approach to healthcare.

Redefining Medical Narratives through Hope

Hope should not be confused with denial or unrealistic expectations. Instead, it embodies an unshakeable eternal belief in the potential for better outcomes. Hope inspires patients to fully embrace each day, despite a dismal prognosis. It motivates them to seek experimental treatments, explore alternative therapies, and enact lifestyle changes. Fundamentally, hope is a testament to our inherent capacity for resilience and transformation.

Nurturing and supporting hope, both from the patient and their supporters is a critical component. It allows patients to surpass the limitations of their conscious belief in their capabilities, instilling a strength that propels them to face adversity head-on. Hope can be contagious in recruiting not only the patient’s supporters to rise above their best but also those medical and healthcare professionals to do the same.

The Role of Healthcare Professionals in Empowering Patients

Healthcare and Medical professionals have a vital role in nurturing a patient’s hope. They can discuss a broad spectrum of treatment options, introduce complementary therapies, offer emotional support, and connect patients with resources like support groups and counseling services. This strategy requires a transition from viewing patients as passive recipients to active participants in their care.

However, we must acknowledge the inherent limitations of medical professionals. Traditional medical training emphasises empirical data and evidence-based treatments, potentially hindering their engagement with less quantifiable elements like hope, willingness, and resilience. Professionals often perceive the world within the confines of their training, experience, and medical cohorts.

Recognising this, the nurturing and support of patients’ hope become even more important when medical science seems to have reached its limit. This hope not only enhances patients’ capacity to venture beyond the medical framework but also provides a bridge across the seemingly impossible. This has led to stunning patient successes that defy conventional explanations within the accepted parameters of the day. These successes continue to occur, primarily due to the patient’s hope, willingness, imagination, and persistence.

Hope must remain fully open at the patient’s exclusive command.

The Empowered Patient Initiative: An Innovative Approach

Informed by these insights, the ‘Empowered Patient Initiative’ continues to develop. This innovative understanding and way promotes patient empowerment through groundbreaking patient-centric initiatives such as ‘The Cancer Toolkit,’ ‘The Patient Journal Series,’ and ‘The Second Opinion Project.’ These resources equip patients with the tools they need to take an active role in their care and nurture hope.

Our goal is to instigate a paradigm shift in healthcare, transforming patients from passive recipients to active, empowered agents of their health journey. By empowering patients, we can unlock future victories over cancer and achieve what appeared unattainable just yesterday.

Yes, it will and is a chicken or egg challenge in that who initiates, for me sitting behind this initiative as I did with my cancer challenge, I moved first, in the hope that those more talented than I would be motivated to join in. I got more than I expected, talent and great character, two powerful ingredients that got us to the moon and around the globe in a wooden boat.


As the founder and director of ‘CCF Australia’, ‘CCF New Zealand’, Creator-Author of ‘The Empowered Patient Initiative’, and ‘The Cancer Success Equation’, my commitment lies in empowering patients and revolutionising the approach to healthcare to elevate the natural advantages that an empowered patient brings to the table.


Questioning is so, so important:

Simplifying and distilling medical information in a way that we as patients can understand and act on is the beginning of patient empowerment and ‘informed choice.’ Understanding creates confidence and leads to better decision-making and confidence.

To be clear, there can be no informed choice if the patient has not been informed or is unable to understand and comprehend, greater effort must be made to ensure understanding and comprehension.

Please share your thoughts and questions about the article in the comments section below so I can continue to simplify it.

Ps if you would like a template of the questions that you should ask your oncologist or surgeon, then drop me an email and I will send you a copy.

After re-reading this article as a patient, here are five questions that potentially need addressing. What do you think? can you add more in the comments below

  1. How can I, as a patient, actively foster hope and resilience, particularly in the face of a dire prognosis?
  2. How can I effectively communicate my hopes and concerns with my healthcare providers, especially when it seems to contradict their medical advice?
  3. Are there any specific techniques or methods recommended for nurturing hope and maintaining positivity during my healthcare journey?
  4. How can I gain access to the resources mentioned, like ‘The Cancer Toolkit,’ ‘The Patient Journal Series,’ and ‘The Second Opinion Project‘?
  5. How can I, as an empowered patient, contribute to the paradigm shift in healthcare? Is there a way to get involved with initiatives like the ‘Empowered Patient Initiative’?
An IHC Immunohistochemical Test Saved My Life:

You need to look no matter how slim the statistics, I am alive because my Oncologist looked – it is that simple and that’s all it took to set my success in motion against all odds, I know others who are the same as me.

The biggest problem I encounter with patients who reach out to me for help, is too many do not look, their oncologists have not educated them on this choice, or further, still, they have actively discouraged them into the belief that it is only a rare chance – so it’s not worth looking or asking the question!

I personally believe that biopsies are the second most important option we as patients have after surgery and must be a subject fully pursued and ruled in or out, that is why a second opinion is essential, and it must come from an Oncologist in concert with a surgeon who both have the current expertise and experience with your exact cholangiocarcinoma diagnosis

Can you add an observation, or a question to improve how it empowers patient understanding and action?

I hope this article has helped empower your knowledge and understanding, let me know your thoughts in the comments below. 

Regards Steve
Ps Have you visited the CCA Patient Toolkit?
Eat light – Move light, be Open, Be Willing, be consistent.