MyDetails
Steve Holmes
I Love Road Cycling, Running, & Rugby – coffee on the sunrise and a pinot or two on the sunset. On the other side of that coin, I equally enjoy aspiring to higher achievements, especially within biotech, NGS, Epigenetic and genomics.
Details
- Ph.+61 415 153 522
- steve@teddermain.com
- steve@cholangio.org
Personal
Originally from Waikanae, New Zealand, we moved to the Gold Coast, Australia in 2005. Claire and I have been happily married since 1989, we have 2 adult children, Zach & Georgia.
Steve
- Email Steve
- Ph: +61 415 153 522
Claire
- Email Claire
- Ph: Claire +61 431 180 783
Location
- Main Beach, Gold Coast, Qld, Australia
Community
- The Villager (Email Magazine)
This is our contribution to our amazing community of Main Beach
Media
- View Social Media Bio
Strava Accounts
Personal Challenges
⏱ Reading time: ~90–100 seconds (~310 words)
By stripping cancer of its complexity, we unlock the power of the patient and accelerate science.
Steve Holmes leads the Cholangiocarcinoma Foundation Australia — a patient-led response model, a culture that operates as a survival system in itself, in real time.
He lost his brother to this disease. Two years later, Steve was diagnosed himself, advancing quickly to late-stage IV with only weeks to live. Against the odds, he survived.
That experience became a blueprint for the next generation of survivorship — proving how patients, science, and healthcare can respond and outpace this cancer more effectively.
As a late-stage IV survivor, Steve instinctively leads from the battlefield — bringing insight and clarity to the frontlines and into the boardrooms that support this fight. He seeks counsel and collaboration only from those who’ve proven themselves there.
To beat such a Goliath — cholangiocarcinoma — Steve insists we must innovate as David did with his slingshot: tight, unexpected, and landing with precision. Many lives were saved from that single act of innovation. The same must be true here.
Today, his work is focused on building the survival-and-prevention model that cholangiocarcinoma — and other GI cancers — have never had.
Overview of Activities
- Innovation: Driving innovation at the intersection of prevention, medical response, and patient-led culture — enhancing survival for today’s patients, now.
- Breakthroughs: Empowering patients and caregivers to channel their real-world expertise through specialised Patient Response Units (PRUs) — delivering breakthroughs that expand survival options for today’s patients at scale.
⏱ Reading time: ~25 seconds (~70 words)
By stripping cancer of its complexity, we unlock the power of the patient and accelerate science.
Steve Holmes, a late-stage IV cholangiocarcinoma survivor, leads the Cholangiocarcinoma Foundation Australia — a patient-led survival system built in real time. After losing his brother and surviving against the odds himself, Steve created a blueprint for next-generation survivorship: innovating at the intersection of prevention, medical response, and patient-led culture to expand survival options for today’s patients.
Cholangio Foundation
Co-Founder & CEO, Cholangiocarcinoma Foundation Australia
Social Media
- Website
- Facebook Page
- Facebook Group
- Youtube Channel (@cholangio)
- Light Australia Green
- Cholangio-Challengers
Support Our Work
Steve
- Email Steve
- Ph: +61 415 153 522
Claire
- Email Claire
- Ph: Claire +61 431 180 783
For Social Media Distribution
Steve Holmes | Survivor, Founder, Architect of Change
Stripping Cancer of Its Reputation. Outpacing Its Impact.
At late-stage, stage 4, with weeks to live, Steve had already endured 25 hours of radical surgery and a failed post-op trial—before a last-minute experimental trial flipped cancer on its head and broke its grip.
Survival was a Delta Moment—but survival alone wasn’t enough.
The system had failed where it mattered most—at the coalface of the cancer battle.
So, Steve and Claire built CancerDelt∆ to fix it.
Big Think. Big Disruption. Big Execution.
✔ Fix the culture – Replace passive care with high-performance patient response strategies.
✔ Dismantle outdated advocacy models – No more fundraising-first, survival-second frameworks.
✔ Execute what saves lives – Not just awareness, but precision-driven survival strategies.
From CancerDelt∆ to the Cholangiocarcinoma Foundation Australia
CancerDelt∆’s first mission? Build an Australian Cholangiocarcinoma Advocacy Engine.
From this, the Cholangiocarcinoma Foundation Australia was created—a response-driven, survival-first organisation, built for execution over awareness.
A patient-led survival system, built from the coalface, not the boardroom.
Engineering the Next Delta Moments
✔ Patient-Led Response: OPR OS – The Optimal Patient Response System, elevating survival response strategies beyond care.
✔ Root Cause Research – The Bile Health Mandate, exposing bile toxicity as a root cause, unlocking prevention and early detection.
✔ NGS-integrations enhancing patient engagement, molecular sequencing, increasing precision medicine options, and survival opportunities.
This isn’t about waiting.
It’s about execution. It’s about survival.
For Distribution
Cholangiocarcinoma Foundation Australia
Cholangiocarcinoma is bile duct cancer.
The Foundation is a patient-led cancer advocacy and research organisation transforming the response to bile-related cancers, including cholangiocarcinoma, liver, gallbladder, pancreatic, and duodenal cancers.
Co-founded by Stage IV survivor Steve Holmes, the foundation pioneers a structured, patient-driven response strategy, shifting the culture from passive care to a proactive, high-performance response model.
Advocacy Beyond Awareness—Driving Real Solutions
We stand shoulder-to-shoulder with patients at the coalface because we are patient-led.
We replace the traditional boardroom advocacy model of slick, awareness-driven charity campaigns with execution over awareness, action over messaging, and measurable survival impact over marketing.
We bridge the gap between patients, clinicians, researchers, and industry, ensuring today’s breakthroughs reach today’s patients—where it matters most—survival at the coalface.
Mission
✔ Empower the Patient → Increase Survival.
✔ Empower Their Community → Exponentially Increase Survival.
Focus
✔ Empowering Patients & Caregivers at the Clinical Level – Ensuring every patient is equipped with a structured response strategy before leaving the diagnosing phase, maximising their ability to engage in effective treatment from Day 1.
✔ Simplify to Survive – Simplification → Understanding → Engagement → Effective Response → Increased Survival.
Cancer is complex. Survival should not be.
✔ Transforming Cancer Culture – Shifting from passive care to a proactive, high-performance response model.
✔ Optimising Patient Response Strategies – Continually innovating structured frameworks, response strategies, and decision-making processes to maximise survival outcomes.
✔ Aligning & Strengthening Communities – Building interconnected patient, clinical, and research ecosystems that capitalise on and elevate lived experience.
✔ NGS Integrations & Precision Medicine Access – Embedding molecular profiling at the point of diagnosis to fast-track precision medicine and targeted therapies. Speed from diagnosis to treatment defines survival outcomes.
✔ Bile Health Research & Prevention – Investigating bile toxicity as a root cause, unlocking early detection and prevention as critical Delta points in the cancer success equation.
For more information about our mission, programmes, and how you can get involved, please visit www.cholangio.org/about
